It’s been a while! For the first time in quite a while I’ve had quite a week of reflection. So I was asked to go and talk to a bunch of teenagers about what happened, Beth one of the mums at school wanted inspirational women to go and talk! It started with me agreeing because I seem to now agree to anything (well things I’d have definitely declined once upon a time), at the beginning of the week I realised I needed some pictures or at least something I couldn’t just go and talk at them. So this is what I put together
Mum thought it was safe enough to share so I bravely put it on Facebook, I wonder how people take my posts & insights into surviving a blood cancer. What I don’t expect are the comments which are amazingly supportive.
Then today I went to the Bloodwise Impact North day, which really cements what I’m part of now, an illness that I’ll never be free from as it has shaped me and who I am. I look back at who I’ve become and I’m a happier person with a far different outlook on life.
So what’s new? I have been working on The Craft Channel for Bead House demo-ing our beads and kits. I never thought I’d accept going on TV but as I said above I’ve vowed to do what I wouldn’t have before. We generally do things rather than thinking of why we can’t do them.
I’m now on 6 monthly appointments! I’ve nearly finished my baby inoculations I think I’ve one I still need to go for. My chimerism never reached 100% (percentage of donor blood) it hangs around 98-99% I think. I need to check, I commented on a previous post that I was at 87% but that’s incorrect, I’d not understood fully the overall value.
I was invited to The calendar girls musical in Leeds, Mum came with me, we made a day of it and we had fantastic seats but no Gary Barlow appearance. A month later I was asked again if I wanted tickets for the Lowry theatre, I mentioned it to Christine at work, who was very eager to go and thank god I did, we were at the back but were treated to a live performance by Gary this time!! There are small perks to this thing I’ve endured. Bizarrely Leah my best friend was at the same performance after booking tickets to take her mum, found out a few days later!
We had a Bloodwise fundraising Christmas shopping day before Christmas raising £1500, no idea yet what this years fundraiser will be.
I’ve realised my 40th will be the same year as I’m 5 years old, so we’re thinking of planning something special for then.
My stamina is not as it used to be, the sofa is a special friend of mine and doing anything stressful or energetic leaves me whacked! When I go to film in London it’s shattering! I also get colds which can floor me, sometimes I’m down for 3 weeks with them and end up retreating to bed for a good week or so. But they are few and far between! My last one turned into pleurisy, nothing like an 18th century disease to remind me I still need to be careful!
But so far so good, everything is going well!