It’s been a while! For the first time in quite a while I’ve had quite a week of reflection. So I was asked to go and talk to a bunch of teenagers about what happened, Beth one of the mums at school wanted inspirational women to go and talk! It started with me agreeing because […]

I referred someone to my blog the other day, it resulted in me coming for a quick peep! Firstly for some reason it republished a blog from early last year, so thank you for the lovely comments but it was an old post named ‘Angels on Earth’. Anyway having a quick read took me back […]

to step back from my blog! Would you believe it’s 2 years since my diagnosis next week, it’s been a tough journey with some real eye openers for me but it generally just became how my life was! Dad and I realised the other day that it was 19months from start to finish in treatment […]

It’s Wednesday and I’ve had a clinic appointment as they are struggling to fit everyone in on the Friday and there was no clinic last week. I got out of hospital a week last Sunday after requiring a 5 day course of nebuliser for RSV a childhood cold/virus. The treatment truly whacked me and last […]

I’m back in Jimmy’s, my temp hit 38 on Sunday and I spent the day in rigours. I came in was admitted straight away no 8 hour wait for a bed! Within an hour of starting antibiotics felt much better and hopefully will be home within a couple of days all being well. This is […]

I am struggling with a cold still, only problems are my temperature floating around the 37’s, shivers and headache, all are rectified by a dose of paracetamol. Jimmy’s don’t want me in unless I go above 38 degrees as they wouldn’t prescribe antibiotics below this and I don’t believe I have any bacterial infection, just […]

Well we’ve had a quiet Christmas and new year really. I’ve picked up a cold and it’s starting to worry me that it may put me back in Jimmy’s. I’ve not felt too great at points over the last few days. The biggest crisis has been we ran out of hot chocolate, we like a […]

As I’m passed 100 days my clinic day has moved to Friday. But today’s was a little special as I had a bone marrow aspiration booked for 9.30, we were there before 9 so I could get my bloods done. We were promptly round to outpatients where they called me through and left me sat […]

How it’s got to Christmas Eve I’m not quite sure? But more importantly how on earth we’ve managed to get everything bought, delivered and wrapped I’ve no idea! I’m hiding in the lounge whilst Andy builds the big stuff! Kids are at mum & dads. I’m just relishing being at home, things could be so […]

I just wanted to post to mark I’m past day 100, I thought it fell on the21st but I was a day out, so a day earlier. The one thing being clear has done is make me eager to get back to full health quicker so I can enjoy things again! Yesterday dad, I and […]